Background and aimsInflammatory bowel diseases (IBD), including Crohn's disease and ulcerative colitis, require an interdisciplinary approach for diagnosis, monitoring, and management. The European Crohn's and Colitis Organisation (ECCO) has developed evidence-based recommendations and quality care standards for IBD management, but gaps between these standards and real-world practice persist. The E-QUALITY task force aimed to evaluate the structure, processes, and outcomes of IBD units across Europe and identify barriers to achieving ECCO quality standards.MethodsA web-based survey was conducted from September 2022 to October 2024 among 245 institutions in 35 European countries. The survey assessed unit structure, interdisciplinary care, services, facilities, and barriers to achieving quality care standards. Subgroup analyses were performed based on institution type, patient volume, and geographical distribution.ResultsFormal IBD units were present in 68% of institutions, with interdisciplinary teams available in 94%. Institutions with >500 active patients were more likely to meet ECCO standards for interdisciplinary care, quality indicators, and patient support but faced challenges such as lack of time and referral pathways. Geographical disparities significantly influenced the availability of resources and services. Key barriers to quality care included lack of time (71%), personnel (69%), and funding (45%).ConclusionsSignificant gaps in quality care standards remain across European IBD units. Enhanced support from ECCO, by education and position papers/guidelines may help bridge these gaps.
Journal article
2025-07-01T00:00:00+00:00
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IBD Department of Gastroenterology and Digestive Endoscopy, San Camillo-Forlanini Hospital, Rome, Italy.
Humans, Colitis, Ulcerative, Inflammatory Bowel Diseases, Crohn Disease, Patient Care Team, Quality of Health Care, Quality Indicators, Health Care, Europe, Standard of Care, Surveys and Questionnaires