This paper provides an overview of the nutritional management and care of people living with motor neurone disease (MND) in a specialist nutrition clinic. A specialist pathway of care has been developed to enable people living with MND to undergo a percutaneous endoscopic gastrostomy (PEG) procedure in a safe way; the pathway incorporates attendance at a dedicated nutrition clinic, a stratification tool to identify patients with a high periprocedural risk and a PEG insertion team with significant experience in the MND population. Since this pathway has been in place, gastrostomies have been successfully placed in patients with a forced vital capacity (FVC) of less than 50%; previously, this would not have been possible.
British journal of community nursing
360 - 363
Motor Neurone Disease Advanced Nurse Practitioner and Care Centre Coordinator.
Humans, Motor Neuron Disease, Vital Capacity, Nutritional Support, Ambulatory Care, Gastrostomy, Patient Care Team, Patient Acceptance of Health Care